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Public Policy

United Cerebral Palsy
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UCPeople, A Weekly Journal for UCP Affiliates
March 5, 2008 Forward to a Friend | Visit UCP.org | Update Profile

  Catch D.J. Gregory on the PGA Tour This Weekend on the Golf Channel
PGA Logo

Are you a golf enthusiast? Even if you're not, you'll want to tune in to the Golf Channel this weekend to learn about D.J. Gregory, a young man with cerebral palsy (CP) who has decided to walk every PGA Tour event during the 2008 regular season (38 weeks of travel and 37 events) and blog about it.

D.J. GregoryWhen D.J. was an infant, doctors told his parents he would never walk. Now 30, D.J. walks with a cane, holds a master degree in Sports Marketing, lives independently, works as an entrepreneur and lets nothing stand in his way. D.J. is truly living his life without limits and wants the world to know that people with disabilities can do whatever their hearts' desire. D.J. has already secured numerous sponsorships for his upcoming adventures, including underwriting from the PGA Tour, Southwest Airlines and Ashworth.

Hear D.J.'s story on the Golf Channel's Golf Central, March 8th & 9th, 9:00 — 10:00 PM EST on both days. D.J. will be featured about 45 minutes into each program. Show times dependent on PGA Tour events so please check your local listings for up-to-the-minute information.

Don't miss this opportunity to learn about D.J.'s adventure and support him and all people with disabilities who are living full, independent and productive lives.

  UCP of Northwest Missouri Annual Chili Cook Off Sets Record
22nd Annual Heart of America Chili Challenge

The 22nd Annual Heart of America Chili Challenge raised a record amount of money for United Cerebral Palsy of Northwest Missouri on Sunday, March 2nd.

Teresa Gagliano, executive director for UCP of Northwest Missouri, said the event raised $59,000 for UCP programs as of Sunday night. Revenue from online auctions, which had yet to be counted, could bump the total to $60,000 or more. The previous fundraising record was nearly $50,000, set in 2007. UCP of Northwest Missouri gathered their earnings through corporate sponsoships, entry fees, ticket sales and donations at each of the 58 competitors' booths. These donations served as competition to name the "People's Choice Award" that ultimately was awarded to "The Scottish Rite" team, who more than doubled the nearest competitor, with a winning donation of $10,934. In all, Gagliano said, People's Choice donations accounted for nearly $20,000 of the event's total.

Source: St. Joseph News-Press
Source: St. Joseph News-Press

Event volunteer, Dorothy Weese, who handed out plates and utensils, said that attendees "were packed all along the walls when we let them in at 2:30. You couldn't see how far back they went."

The competition was comprised of 58 contestants competing to become the State Champion. The awards consisted of three categories, amateurs, professionals and commercial sponsors with amateurs taking the top three spots.

For more information, please read the St. Joseph New-Press article or visit the UCP of Northwest Missouri Web site.

  Disability Policy Seminar: Advocacy Still Strong After 32 Years
Captiol Building Dome

The 2008
Disability Policy Seminar
Wrap Up
Advancing Disability Policy
in an Election Year

March 2-4, 2008

Vote Button Graphic

The 32nd annual Disability Policy Seminar wrapped up yesterday with visits to Capitol Hill by advocates from 43 states and the District of Columbia. Based on preliminary feedback from the various state delegations, advocates found generally receptive responses to our legislative priorities.

However, much will depend on the follow up with the Congressional offices in months to come.

Over 500 persons were in attendance at the 3-day Seminar, entitled "Advancing Disability Policy in an Election Year." The Seminar was jam packed with information on the following key public policy issues

  1. Medicaid Long Term Services and Supports
  2. CLASS Act
  3. Medicaid Regulations
  4. Budget & Appropriations
  5. Health & Wellness
  6. Direct Support Workers
  7. DD Act
  8. Employment
  9. Education
  10. Housing
  11. Social Security
  12. ADA Restoration
  13. Autism Spectrum Disorder
  14. Housing Crisis Information by State

Sessions on these topics included presentations by numerous Congressional staffers from Committees with jurisdiction over related legislation, as well as Co-chairs of task forces of the Consortium for Citizens with Disabilities (CCD). Connie Garner, the Disability Policy Director of the Senate Health, Education, Labor and Pensions (HELP) Committee, was the recipient of the Leadership in Disability Policy award.

Leadership from the five sponsoring organizations - The Arc of The United States, American Association on Intellectual and Developmental Disabilities, Association of University Centers on Disabilities, United Cerebral Palsy, and National Association of Councils on Developmental Disabilities anticipate another highly successful Seminar next year. Mark your calendars for April 27 -29, 2009 in Washington, D.C.

For additional information on the 2008 Seminar, including presentations, please visit the Disability Policy Seminar Web page.

  Let Congress Hear From You at the 2008 Believable Hope Conference

Headed to Washington, D.C. this June for the 2008 Believable Hope Conference? Don't miss out on the opportunity to get in front of your Congressional leaders to discuss the important issues affecting people with disabilities today... and in the future. Being an election year, it is even more critical that your voice is heard on topics such as accessible voting, Medicaid, employment, and increased benefits for direct support professionals.

Sign up now and speak out for people with disabilities! If you have already registered for the conference but are interested in participating in the Hill visits, please contact Trevor DaRin at (800) 872-5827 x7168.

In addition to your chance to meet with Congressional leaders, this year's conference includes an incredible program and many exciting events.

Register Today

Some program topics:

  • » Social Networking in a Virtual World
  • » Our Vote Counts:
    People with Disabilities in 2008
  • » I Need Answers Now:
    Resources for Professionals and Parents of Children, age 0-5
  • » Accessing Information & Referral in the 21st Century
  • » And More!

Don't Delay - Register today for the 2008 Believable Hope Conference, sponsored by United Cerebral Palsy.

» View the conference brochure.

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  In the News

Celebrity dance partners step out to aid United Cerebral Palsy
Herald & Review, 3/4/08
That's part of the reason the Richland Community College president is stepping out of her comfort zone and onto the dance floor for Celebrities Dancing for Dollars, a fundraiser for United Cerebral Palsy Land of Lincoln.

Riders with disabilities join in Bike Week
The Orlando Sentinel, 3/4/08
They lost limbs. They suffered debilitating diseases. They had strokes.

But their motorcycling souls have remained intact and through a growing movement, riders with disabilities are finding ways to stay on the road — and participate in rallies such as Bike Week, which continues through Sunday in Daytona Beach.

Local Flavor: Chapin's, M&M Specialties sweeten the competition at UCP fundraiser
Morris Daily Herald, 3/2/08
For the 13th year, United Cerebral Palsy of Will County held The Great Chefs Tasting Party and Auction as its major fundraiser at Bolingbrook Golf Course.

Poker and party in the cards for UCP, Cheryl Hines
The Orlando Sentinel, 3/2/08
Actress Cheryl Hines, a UCF alum and star of HBO's Curb Your Enthusiasm, hit town this weekend for one of her annual gigs — helping United Cerebral Palsy of Central Florida raise a few hundred thousand dollars.

Conference targets achievement gap: Parents of the disabled learn advocacy skills
The Boston Globe, 3/2/08
The blustery, snowy morning didn't prevent more than 850 parents and advocates from gathering at the World Trade Center yesterday for the Federation for Children with Special Needs annual conference. After all, these people are used to overcoming adversity.

Raising awareness, advocating change
Laramie Boomerang, 3/1/08
March will be an important month for many in Laramie. No, not just because of NCAA “March Madness.” Something much more important is happening, which relates to the everyday life of many residents. March is National Disabilities Awareness Month and a Laramie group will be working hard to educate and advocate.

Illness can't stop fan's walk to dream
Palm Beach Post, 2/28/08 (Audio)
D.J. Gregory has cerebral palsy, a cane and a plan.

He's going to walk the PGA Tour. He's going to walk every round of 37 events.

'The last great struggle' A pioneer views disability as the final frontier in civil rights
The Boston Globe, 2/26/08 (Audio)
When you're born with cerebral palsy, you have to battle constantly against the low expectations of others. When you're black and in a wheelchair, you have to combat the assumption that you are a victim of gang violence. When you're whip-smart in ways that the world may not see, you have to make the world see it.

Send UCP affiliate stories to Will Hull for submission to UCPeople.



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